孙祯锋. 比较法视域下科学研究处理个人数据的法律界限[J]. 科技进步与对策, 2022, 39(24): 91-99.
Sun Zhenfeng. Legal Boundaries of the Processing of Personal Data in Scientific Research from the Perspective of Comparative Law. SCIENCE & TECHNOLOGY PROGRESS AND POLICY, 2022, 39(24): 91-99.
[1] SEE LINDEN K, KELLI A, NOUSIAS A. A CLARIN contractual framework for sharing personal data for scientific research[M]//SIMOV K, ESKEVICH M. Selected papers from the CLARIN annual conference 2019. Linkoping University Electronic Press,2020:75-84.
[2] Academy of Medical Sciences. Personal data for public good: using health information in medical research[EB/OL].[2021-02-02].http://www.acmedsci.ac.uk/index.php?pid=99&puid=62.
[3] 刘静怡.社群网络时代的隐私困境:以Facebook为讨论对象[J].台大法学论丛,2012,41(1):9-10.
[4] HELEN NISSENBAUM. Privacy in context: technology, policy, and the integrity of social life[M].Stanford University Press,2009:140-160.
[5] 柴之芳.科学研究是一项公益事业[J].科技导报,2017,35(1):9.
[6] 王悠然.公共价值科学研究有待重视[N].中国社会科学报,2020-08-21(003).
[7] VAYENA E, HAEUSERMANN T, ADJEKKUM A, et al. Digital health: meeting the ethical and policy challenges[J]. Swiss Medical Weekly,2018, 148: w14571.
[8] BIETZ M, PATRICK K, BLOSS C. Data donation as a model for citizen science health research[J].Citizen Science: Theory and Practice, 2019,4(1):1-11.
[9] DEACON HARRIET. Racism and medical science in South Africa's Cape Colony in the mid-to late nineteenth century[J].Wash Lee Law Review,2000,15:190-206.
[10] MARK J TAYLOR.Health research, data protection, and the public interest in notification[J]. Medical Law Review, 2011,19:267-303.
[11] MICHAEL WEIL, SATISH LALCHAND. Five questions about the misuse of consumer data[EB/OL].[2021-06-17]. https://www2.deloitte.com/us/en/pages/advisory/articles/five-questions-about-the-misuse-consumer-data.html.
[12] 李震山.来者犹可追，正视个人资料保护问题[J].台湾法学杂志,2005,76(5):229.
[13] 王德志.论我国学术自由的宪法基础[J].中国法学, 2012,29(5):15.
[14] KRUTZINNA J, FLORIDI L. Ethical medical data donation: a pressing issue[M]//KRUTZINNA J, FLORIDI L. The ethics of medical data donation. Philosophical Studies Series, Springer, 2019.
[15] RICHTER G, BORZIKOWSKY C, LESCH W, et al. Secondary research use of personal medical data: attitudes from patient and population surveys in the Netherlands and Germany[J].European Journal of Human Genetics, 2021, 29(3): 495-502.
[16] VAYENA E, GASSER U, WOOD A, et al. Elements of a new ethical framework for big data research[J]. Wash Lee Law Review,2016,72(3):420-441.
[17] 周汉华.个人信息保护法(专家建议稿)及立法研究报告[M].北京：法律出版社, 2006:9.
[18] 赵宏.《民法典》时代个人信息权的国家保护义务[J]. 经贸法律评论,2021，26(1):12.
[19] 联合国贸易和发展会议（UNCTAD）统计数据[EB/OL].[2021-04-24].https://unctad.org/page/data-protection-and-privacy-legislation-worldwide.
[20] 高富平.论个人信息处理中的个人权益保护——“个保法”立法定位[J].学术月刊,2021，65(2):112.
[21] 欧盟一般数据保护条例[EB/OL].丁晓东,译. [2021-04-21].https://wenku.baidu.com/view/f7365a101fd9ad5 1f01dc281e53a580216fc5027.html.
[22] 邱文聪.健保资料库案会议记录[J].月旦法学杂志,2018，20(1):73.
[23] 刘颖.日本个人信息保护法[J].北外法学,2021(2):217-256.
[24] EVELIEN BROUWER. Legality and data protection law: the forgotten purpose of purpose limitation[M]//BESSELINK LFM, PRECHAL S, PENNINGS F.The eclipse of the legality principle in the European Union. Alphen aan de Rijn: Kluwer Law International, 2011:273-294.
[25] 张陈弘.GDPR关于搜用一般个人资料之合法事由规范[J].月旦法学杂志,2019,19(2):177.
[26] 巴西《通用数据保护法》与越南《个人数据保护法（草案）》译文[EB/OL].[2021-04-22].https://www.secrss.com/articles/29976.
[27] 世新大学.欧盟国家个人资料保护法制因应GDPR之调适[R/OL].[2021-04-23]. https://www.ndc.gov.tw/nc_1871_34353.
[28] 周汉华.探索激励相容的个人数据治理之道——中国个人信息保护法的立法方向[J].法学研究,2018,65(2):3-23.
[29] 梁泽宇.个人信息保护中目的限制原则的解释与适用[J].比较法研究, 2018,32(5):16-30.
[30] ROTHSTEIN M A, KNOPPERS B M, HARRELL H L. Comparative approaches to biobanks and privacy[J]. Journal of Law Medicine & Ethics, 2016, 44(1):161-172.
[31] International ethical guidelines for epidemiological studies[EB/OL].[2021-04-17]. https://cioms.ch/wp-content/uploads/2017/01/WEB-CIOMS-EthicalGuidelines.pdf.
[32] JANE KAYE, EDGAR A WHITLEY, DAVID LUND, et al. Dynamic consent: a patient interface for twenty-first century research networks[J]. European Journal of Human Genetics,2015,2(23):141-145.
